Deena BinghamI wanted to share my time hop photo today: It has been four years since I started on Benlysta (belimumab) and I am happy to say that so far the infusions with a combination of other medicines and supplements, all seems to be working for me! I still get nauseous for about a day after an infusion, I have them every four weeks, and the Solumedrol every 8 weeks with it. I do tend to get a little more sick for a day or two when the Solumedrol is added to my port with the Benlysta but other than the that I’d say four years later my quality of life has definitely improved :-). My side note would be that the infusions alone are not enough! Work with your doctors to find the best medicine & supplement cocktail for you. This may take awhile so hang tough, work through the failures and successes but keep trying different ones. Add to this good diet and nutrition, physical exercise of any kind and a good mental outlook. This all leads to a better quality of life! Your disease does not define you! God Bless and hope you find your joy today.
PS: I am not a rep for Benlysta or any other medicines :-). Just sharing a bit of my story, what works for me may not work for you but keep hanging tough. A friend posted on my site the other day “Keep fighting like your are the 3rd monkey trying to get on Noah’s ark”. 🙂
